Thursday, June 18, 2009
Please pray for Noah
I received an email from Noah's mom this morning and reading through their blog just breaks my heart. Part of me has wondered if Kyleigh has some kind of Mito disorder (with her multiple system failures) and I pray that we will never have to find out.
Noah is 2 1/2 and is living with Mitochondrial disease. He's TPN dependent, and has heart, bone marrow, blood pressure, autoimmune, and immune system issues. He and his family could DEFINITELY use any and all prayers you can muster up!
Wednesday, April 22, 2009
IT is with a heavy heart that I post this. Sweet little Kayleigh earned her wings on May 11, 2009. Her family's sweet spirit still comes through in every post about the memorial and their life from here on. I hope that you will continue to pray for the Freeman family as they learn to live without their little Kayleigh.
URGENT PRAYERS NEEDED FOR KAYLEIGH. It seems that after her g-tube placement / nissen surgery Kayleigh now has a big part of her cerebral cortex that is not functioning (read: brain dead). This little girl is a miracle in tiny form and we are praying with all our hearts alongside her family and friends that God will see fit to give her one more miraculous healing.
Go here to read her story and her parent's desperate plea for prayers.
URGENT PRAYERS NEEDED FOR KAYLEIGH. It seems that after her g-tube placement / nissen surgery Kayleigh now has a big part of her cerebral cortex that is not functioning (read: brain dead). This little girl is a miracle in tiny form and we are praying with all our hearts alongside her family and friends that God will see fit to give her one more miraculous healing.
Go here to read her story and her parent's desperate plea for prayers.
Friday, March 27, 2009
Pray for Elise!
Little Elise was born on March 7th at 27 weeks and is now tipping the scales at 2 lb 13.2 lb. If you will take a moment of your day today and pray for Elise and her family. You can read their story here!
Wednesday, March 25, 2009
Pray for Stellan!!!
When I was very new to the Blogosphere I came across MckMama's blog. Her youngest baby, Stellan, is truly a miracle and he is currently in the ICU with SVT (which is what nearly claimed him in utero!) So if you are out there and praying today... pray for Stellan!
Visit their blog here: http://www.mycharmingkids.net/
Saturday, March 14, 2009
This blog is dedicated to the children who face life altering medical issues and have to overcome obstacles each day just to live their lives. Our daughter, Kyleigh was born with a large set of chronic medical issues. She has 17 separate diagnoses, 37 specialists to care for her, 3 hospitals, and more love than she will ever know. But our story is NOT unique. Every single day, parents just like me, are forced to make decisions they should never have to make! They sit in hospital rooms around the world, praying and crying out to God for the healing of their children's bodies.
If you have a child (or parent) who is in need of prayer please submit:
Their name (first name is fine or first and middle)
Link to blog or website (if there is one)
Specific need (if you are comfortable sharing)
ALSO... I know that the fruits of our prayers are evident and I would love to share those! So.... send any PRAISE requests you have this way!
SUBMIT TO:
schmidt.amber@kentuckystudio.com
I hope that each day you will open this blog, lay your hand on the screen and cry out to God for their healing. I hope that you will pray for every single parent that they will be given strength, peace and joy to see them through their journies.
Won't you join them in their prayers?
Won't you join them in their prayers?
Join us in praying for:
Abby
Amanda
Ana Maria
Benjamin F. - whose mommy is pregnant with his little sister!! :)
Benji D. - just received a new diagnosis (not one that anyone wanted to hear)
Bentley
Billy
Brady M.
Brittan
Brody T.
Brody W.
Carrie M.
Cassidy T.
Elias
Elise
Ellie
Emma J.
Eithene H.
Gavin
Hannah
Ivy
Jake
Jonah
JP
Landon W.
Lucy H.
Maggie R.
MaKayla G.
Mason G.
Maya
Megan
Melanie G.
Morgan
Morgan G.
Nathan F.
Noah E.
Parker U.
Raegan
Saylor O.
Samuel
Sarah Kate
Stellan
Thomas L.
The Tipping Sextuplets
Tony B.
Trystan
Tyler A.
Violet R.
Whitney's perfectly ordained peanut to be!
Zachary
Pray for the families of little Angels:
Audry - earned her wings May 12, 2008
Ava Ann - earned her wings Jan 20, 2008
Dylan Gabriel- earned his wings June 17, 2008
Jaden - earned his wings on March 4, 2008
Lilie - earned her wings 9/23/2008
Riley - earned her wings on February 16, 2008
Ryan - won his battle May 1, 2008
Abby
Amanda
Ana Maria
Benjamin F. - whose mommy is pregnant with his little sister!! :)
Benji D. - just received a new diagnosis (not one that anyone wanted to hear)
Bentley
Billy
Brady M.
Brittan
Brody T.
Brody W.
Carrie M.
Cassidy T.
Elias
Elise
Ellie
Emma J.
Eithene H.
Gavin
Hannah
Ivy
Jake
Jonah
JP
Landon W.
Lucy H.
Maggie R.
MaKayla G.
Mason G.
Maya
Megan
Melanie G.
Morgan
Morgan G.
Nathan F.
Noah E.
Parker U.
Raegan
Saylor O.
Samuel
Sarah Kate
Stellan
Thomas L.
The Tipping Sextuplets
Tony B.
Trystan
Tyler A.
Violet R.
Whitney's perfectly ordained peanut to be!
Zachary
Pray for the families of little Angels:
Audry - earned her wings May 12, 2008
Ava Ann - earned her wings Jan 20, 2008
Dylan Gabriel- earned his wings June 17, 2008
Jaden - earned his wings on March 4, 2008
Lilie - earned her wings 9/23/2008
Riley - earned her wings on February 16, 2008
Ryan - won his battle May 1, 2008
If you have a child (or parent) who is in need of prayer please submit:
Their name (first name is fine or first and middle)
Link to blog or website (if there is one)
Specific need (if you are comfortable sharing)
ALSO... I know that the fruits of our prayers are evident and I would love to share those! So.... send any PRAISE requests you have this way!
SUBMIT TO:
schmidt.amber@kentuckystudio.com
Friday, March 13, 2009
Pray for Jonah
Urgent Prayers needed!!! I happened upon a blog of Patrice and Matt Williams. Their beautiful little baby Jonah was born with a RARE Skin condition called Epidermolysis Bullosa. This is a very intense condition that causes even the lightest of touch or tapes such as tegaderm, etc... to produce blisters and break the skin. If you would like to read more about the condition itself click on the diagnosis above and it will take you to Wikipedia. Right now... this little boy and his family need prayer!!!!!!! I know that we have the means to offer that! So please. Forward this blog link to everyone you know. Send out a mass email to Facebook friends and Email contacts and lets gets a new round of prayers started for this little amazing man!
Visit their blog here: http://patriceandmattwilliams.blogspot.com/
Visit their blog here: http://patriceandmattwilliams.blogspot.com/
Thursday, March 12, 2009
Pray for Abby
I came across the Riggs Family today. Their 4 year old daughter Abby, who is adopted from Guatemala, is currently battling an aggressive form of Leukemia. I know that she could use our prayers! Please send us a few each day for her!
Go here to visit their blog and read their story: http://www.riggsfamilyblog.com/
Wednesday, March 11, 2009
Prayers and Praises from Lucy's Cincinnati Locale!
One of our friends on the list... Miss Lucy ... had her big surgery on Tuesday and she is now OSTOMY LESS!!!!!!!! FOREVER! Dr. Levitt said the surgery went EXCELLENT and we are VERY happy that Miss Lucy's tummy is now minus one stinky bag!
Continue to pray for her pain management and recovery!
Visit her here: http://www.caringbridge.org/visit/lh
Continue to pray for her pain management and recovery!
Visit her here: http://www.caringbridge.org/visit/lh
Thursday, March 5, 2009
Zachary and Tyler
An urgent prayer request for Zachary. Zachary is 5 years old and at 11 months old he received a kidney from his father. He suffers from Grade 5 (the worst) Kidney reflux, severe reflux of the esophagus and electrolyze imbalance. As of now his daddy's kidney is failing. They need some extra special prayers right now.
http://help-zachary.com/
Baby Tyler has prune belly and just start dialysis for his failing kidneys. He really needs to be bigger in order to transplant. Please pray for this little guy!
http://www.caringbridge.org/visit/babytyler1
http://help-zachary.com/
Baby Tyler has prune belly and just start dialysis for his failing kidneys. He really needs to be bigger in order to transplant. Please pray for this little guy!
http://www.caringbridge.org/visit/babytyler1
Sunday, February 22, 2009
Pray for Eithene
Today our friend Eithene needs a few extra special prayers. Last night there was a pretty scary episode of unconsciousness that landed her in the ICU. You can read about it on their Caringbridge site. Miss Eithene continues to be a mystery to many of her docs. She is a little extra special to me as she and Ky share SO many similarities in diagnosis!
PLEASE PRAY that God would give her doctors the wisdom and patience to find answers and get a new routine that would keep her healthy and HOME for a while!
http://www.caringbridge.org/visit/eithenerosehilliard
PLEASE PRAY that God would give her doctors the wisdom and patience to find answers and get a new routine that would keep her healthy and HOME for a while!
http://www.caringbridge.org/visit/eithenerosehilliard
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