"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future." ~Jeremiah 29:11
Friday, March 27, 2009
Pray for Elise!
Little Elise was born on March 7th at 27 weeks and is now tipping the scales at 2 lb 13.2 lb. If you will take a moment of your day today and pray for Elise and her family. You can read their story here!
My daughter, Kyleigh, was born with a rare disease called VACTERLS Association which includes Tethered Cord, Chiari Malformation Imperforate Anus, A/V Canal, Congenital Heart Disease, Tracheal Bronchus, Reactive Airway,GERD, Congenital Kidney Duplication Right, Left Kidney Reflux, Neurogenic Bladder, Pemphigus, Low IgG, Intestinal Dysmotility, Colonic Dysmotility, Vagal Nerve Damage. She has undergone 15 major surgeries including two open hearts and has spent more than a year's worth of days in the hospital. She feeds through a g-tube, is catheterized every 4 hours, has little chance of continence without a miracle. Although her life will never be "normal" by many standards, she is gorgeous person inside and out. She is truly a miracle. God has given us the privilege of being her parents. I can only hope, for the rest of my life, to be half the woman my daughter is at 2 years old. Our life has been anything but EASY for the past three years. There have been MANY times that we have been riding on nothing but fumes and faith. We are so incredibly thankful for the prayers of so many. We truly believe that those prayers are what carried us through our darkest hours.